Hello all, Back again in spite of popular demand. A lengthy recap is in order to bring friend and foe up to date So,brain surgery 07/07,radiation five days a week for six weeks,and daily chemo for about six weeks.Then chemo for five days out of every 28 until 12/09. At this point I was functioning well(I could wield a fly rod) and my bone marrow had wearied of the toxic effects of chemo. I was still alive(always an outlier) and the experts said stop the chemo. I continued to get bimonthly MRIs and they remained stable. Marjorie and I traveled to Europe with our chorale group, went to Wales and England last summer to sing again, volunteered, fished, built furniture, participated in a Hindu engagement ceremony of our nephew who is marrying a beautiful MD PHD candidate at UC SF She is from Bangalore and we need to return for the wedding in December 2012, visited grandchildren, and had a rich life.
In April a followup MRI showed new changes and I wanted to know what they meant. On 4/10we unleashed the Neurosurgeon who kindly removed enough right brain to confirm that the tumor had returned but not so much brain that I was turned into a radical right-winger. My recovery from surgery was complicated by seizures, but I don't remember much of that, in fact I didn't really "come to" until 4/29 12 days after discharge from the hospital. I make slow progress in my rehab effort each day. Cared for by Saint Marjorie, surrounded by well wishers(they want my fishing secrets.I feel them probing my mind. They shall not succeed). Ahead we face the challenge of finding a new chemo program. The majority are experimental since fewer than 5% of people with this type of brain malignancy survive this long and no one can speak with science based authority on what is the correct path in this illness at this time. Our daughter, Maryann, is arranging a neurooncology
consultation at the University of Washington to help start a program. She says "congratulations Dad you may be put on the most expensive drug ever put on the market" it has flib-flab some where in the name. Thanks to all of you for funding Medicare.The neurosurgeon and hospital also thank you. I don't know about this new drug. You may have to be in the 1% to enjoy it's benefits.
On the plus side we are expecting our fifth grandchild within the month and our oldest son is marrying a wonderful women in Seattle in August. Much to celebrate and be thankful for. Too much complaining these days me thinks, although it occurred to me as I began recovering at home that I was fortunate to have a roof over my head and guaranteed at that,food to eat,clothing,medical care,caring family.Fortunate to be born in this spot at this time and married to this woman. I'll be back with serious cogitation in a few days,Eric
In April a followup MRI showed new changes and I wanted to know what they meant. On 4/10we unleashed the Neurosurgeon who kindly removed enough right brain to confirm that the tumor had returned but not so much brain that I was turned into a radical right-winger. My recovery from surgery was complicated by seizures, but I don't remember much of that, in fact I didn't really "come to" until 4/29 12 days after discharge from the hospital. I make slow progress in my rehab effort each day. Cared for by Saint Marjorie, surrounded by well wishers(they want my fishing secrets.I feel them probing my mind. They shall not succeed). Ahead we face the challenge of finding a new chemo program. The majority are experimental since fewer than 5% of people with this type of brain malignancy survive this long and no one can speak with science based authority on what is the correct path in this illness at this time. Our daughter, Maryann, is arranging a neurooncology
consultation at the University of Washington to help start a program. She says "congratulations Dad you may be put on the most expensive drug ever put on the market" it has flib-flab some where in the name. Thanks to all of you for funding Medicare.The neurosurgeon and hospital also thank you. I don't know about this new drug. You may have to be in the 1% to enjoy it's benefits.
On the plus side we are expecting our fifth grandchild within the month and our oldest son is marrying a wonderful women in Seattle in August. Much to celebrate and be thankful for. Too much complaining these days me thinks, although it occurred to me as I began recovering at home that I was fortunate to have a roof over my head and guaranteed at that,food to eat,clothing,medical care,caring family.Fortunate to be born in this spot at this time and married to this woman. I'll be back with serious cogitation in a few days,Eric

